ADULTING WITH FASD
I am not one for cliches, but I am going to quote one here, because it is perfect. "Hindsight is twenty twenty."
I went through my childhood, my teen years, early 20s and 30s, into the present, seeking out certain behaviors, because they feel good (No, I am not talking about that). I am talking about SENSORY SEEKING BEHAVIORS, and SENSORY SENSITIVITY. Take my love for weight on me. Here is an example for you: When my brother and I were growing up, we had these big chairs that were soft. they folded into chairs, and folded out into beds. Some of you may know that as Flip & F _ _ _s. (college term). We created this game called,Meatball Sandwich. ONe of us would flip the chair out, turn it upside down, and the other one would crawl inside. Then the chair would be folded onto us, and the other person would jump on it, singing in a melodic tone, "Meatball Sandwich." I never realized until after my diagnosis with FAS how much I enjoyed being jumped on. My brother was 4 years older than me, so he had weight on me. I sought out that weight on me. To this day, I still seek out weight. I have retired the meatball sandwiches for weighted blankets, and my youngest walking on my back. These center me, it feels so good! If I feel tense, and like my senses are all over the place (kind of feels like every muscle group inside me wants to dance and be jittery), A weighted blanket works wonders.
Another behavior I have had since childhood is rubbing my ears. I do it when I am tired or bored. The softness and smoothness of them, and i like to twist them around. I know it is weird and quirky. They are my security blanket. I can't lose them so that is good.
While I am discussing sensory issues, there are a few items and sounds I dislike. I hate Goop and slime. My child likes it, and I struggle to touch it. It feels icky to me. I am not a big fan of wings either because they cause a mess on my hands. I can't handle eating oatmeal. The texture makes me want to gag. Weird thing is though, I can eat applesauce? And Grits. OMG, no thank you. I tried them the other day. Hard and soggy in one? Disgusting to me. I gagged, again. Eggs. I don't care how they are cooked. The texture of any egg, any type, makes my mouth cringe. French Toast also. I don't do soggy well. As far as sounds go, sudden and quick loud noises I am not used to or am not expecting can make the Bibinski Startle Reflex come out. I jump and my hands jerk. The same thing newborns do when they awake sometimes. I love how newly packaged items feel when you take the plastic off. It is so so satisfying to my sense of touch. It feels so complete.
So, those are some of my main sensory matters I have. You all out there with an FASD, tell me what some of your sensory stories?
I am an adult living with aFetal Alcohol Spectrum Disorder. As an adult with Fetal Alcohol Syndrome, I am constantly searching for sites that share in my quirkiness, and answer my questions i have about adults living on the spectrum. Take a peek at my blogs! They describe daily quirks, and ideas for parents, educators, children and adults living with FASDs.